Useful Resources From the Leukemia Research Foundation

The Leukemia Research Foundation is proud to offer our programs and services for blood cancer patients, families and caregivers. In addition, we are pleased to share an extensive directory of national and international resources.

Below are links we have compiled for your use. We are always interested in hearing about informative sites that you have found helpful, so please, e-mail us if there is a link you would like us to consider listing!

Advocacy, News and Current Issues

  • Affordable Care Act puts consumers back in charge of their health care.
  • The Children's Cause is a great place to learn more about national policy issues that affect research, health care, and follow-up services for cancer survivors.
  • Reuters Health,provides consumer-friendly news on health issues. You can either click on "Health eLine" on the left menu bar to see the most recent health news, or click "search" at the top of the menu bar to search for specific terms.
  • Journal articles,summarized by OncoLink
General and "Gateway" Websites

  • American Cancer Society.,This site has a wealth of information on specific conditions, statistics, treatment options, medical updates, and so forth.
  • American Childhood Cancer Organization.,A great resource for families with a child affected by cancer. Treatment, support, advocacy, legislative updates, and a great deal of publications can be found here, as well as links to websites specifically geared to kids, teens, and siblings.
  • Assistance speaking to your doctor about treatment. Tips provided by the National Comprehensive Cancer Network.
  • A platform to share cancer information, expertise, and resources. This includes discussions about current events, including breaking news about cancer advances and other topics important to people affected by cancer and much more.
  • Cancer Legal Resource Center. CLRC provides information and education about cancer-related legal issues to the public through its national telephone assistance line.
  • Cancer Profiler. The Cancer Profiler is a tool to help you better understand potential treatment options for leukemia. Users will need to register with the site (no charge) to access the tool, and take a short (15-20 minute) survey in order to get their potential treatment information. There is also a very helpful glossary.
  • Legal Resources for Cancer Patients. Information about legal rights and resources available.
  • MedlinePlus is a service of the U.S. National Library of Medicine and the National Institutes of Health. This wonderful site includes information on various health topics, an index of prescription and over-the-counter medications, a medical encyclopedia, dictionary, news, directories, and other resources.
  • National Cancer Institute. This is an extremely well-organized site with information on conditions, treatment, prevention, causes, support and resources, clinical trials and literature, and a comprehensive dictionary.
  • National Children's Cancer Society. Again, this website has a huge variety of resources and assistance to offer.
  • National Comprehensive Cancer Network. The NCCN Patient and Caregiver Resources section provides concise and relevant information about cancer, not only to patients, but also to the people who care for them and their clinicians.
  • Online Pharmacies Guide. This guide was developed by to help consumers determine which pharmacy will work best for their needs by comparing features and reading reviews from others who use their online services.
  • Patient Power. Patient Power connects you with the latest news and most authoritative experts - patients as well as doctors - for your health concern.
  • People Living With Cancer is the patient information website for the American Society of Clinical Oncology (ASCO). Here you will find coping resources, clinical trial information, strategies for managing side effects, "Ask the ASCO Expert" series, the latest cancer news, and much more.
  • Smart Patients. Smart Patients is an online community where cancer patients and caregivers learn from each other about treatments, clinical trials, the latest science, and how it all fits into the context of their experience.
  • St. Jude Children's Research Hospital. This is the gateway to the leukemia, lymphoma and myelodysplastic information at St. Jude Children's Research Hospital.
  • Teens Living With Cancer. The Teens Living with Cancer website is the most comprehensive and authoritative web-based resource for teens with cancer, providing an array of resources to support teens, their families and friends.
Leukemia Resources

Lymphoma / Hodgkin's Disease Resources

Non-Hodgkin's Lymphoma Resources

Financial Assistance

Emotional Support Resources and Personal Stories

Specific Resources for Young Adults with Cancer

  • Beyond the Cure is sponsored by the National Children's Cancer society, and has information about the late effects of cancer treatment for those diagnosed with cancer as children or teenagers.
  • Teens Living With Cancer is a fantastic website sponsored by Melissa's Living Legacy Foundation and Children's Oncology Group.
  • Group Loop is an online support group for teenagers with cancer.
  • Fertile Hope helps cancer patients deal with fertility issues associated with cancer treatment.
  • Planet Cancer was founded by young adults in their twenties; either in the midst of or barely out of treatment for cancer.
  • StupidCancer is the nation's largest support community for young adults affected by cancer (15-40) and serves as a bullhorn for the young adult cancer movement.
  • Ulman Cancer Fund for Young Adults offers support, education, and resources, including a free guide book for young adults facing cancer.
Transplantation – Stem Cell, Cord Blood, Bone Marrow, and Donating the Same


  • American Cancer Society has several transportation assistance programs all across the country.
  • Compass to Care offers financial support for transportation to families who have a child under the age of 18 currently in an active cancer treatment.
Workplace Resources

  • Workplace Transitions: A unique group of organizations with a shared goal of helping employers manage cancer in the workplace